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The challenge of the information culture for the paediatrician
  1. Andy Spencer1,2,3,
  2. David Low4,5,6
  1. 1The Information Centre for Health and Social Care, Leeds, UK
  2. 2University Hospital of North Staffordshire, Stoke-on-Trent UK
  3. 3Keele University, Keele, Staffordshire, UK
  4. 4Department of Health Informatics Directorate, London, UK
  5. 5Sandwell and West Birmingham Hospitals NHS Trust, Birmingham, UK
  6. 6RCPCH Informatics Subcommittee, London, UK
  1. Correspondence to Dr S A Spencer, The NHS Information Centre, 1 Trevelyan Square, Boar Lane, Leeds LS1 6AE, UK; andy.spencer{at}


Summary ‘Liberating the NHS’ and the new outcomes framework place information at the heart of the management of the National Health Service (NHS) and develop further the quality framework defined by Lord Darzi. In support of children, paediatricians have a responsibility to understand the informatics agenda and to ensure that data collection is as accurate as possible. There are particular difficulties in supplying a comprehensive health record for children and providing them with the benefits of access to their health records. It is essential that paediatricians work to ensure that these problems are overcome and that children do not miss out because of legal, practical and ethical issues which can be overcome, but often are permitted to stand in the way of real improvements.

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  • Competing interest Dr Spencer is National Clinical Lead for Hospital Specialties at the NHS Information Centre and Dr Low is National Clinical Lead Paediatrics & Child Health (Department of Health Informatics Directorate).

  • Provenance and peer review Commissioned; externally peer reviewed.