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“Contact A Family”: professionals and parents in partnership
  1. S Davies1,
  2. D Hall2
  1. 1Paediatric Project Officer, Contact A Family, 209–211 City Road, London EC1V 1JN, UK
  2. 2Institute of General Practice, ScHARR, University of Sheffield; Institute of General Practice, Community Sciences Building, Northern General Hospital, Sheffield S5 7AU, UK
  1. Correspondence to:
    S Davies
    Contact A Family, 209-11 City Road, London EC1V 1JN, UK; Sheila.daviescafamily.org.uk

Abstract

This paper considers the evidence base on the role of parent organisations in meeting the needs of parents of disabled children for information and support. Having a disabled child is a major cause of stress and has an impact on the health and wellbeing of the entire family. Current concepts of stress and coping are used to consider coping strategies, including the search for information, the desire to stay in control, and the quest for social support. How and when information and support are provided will impact on how well the family adjust and cope.

  • disability
  • parents
  • social support
  • information

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Footnotes

  • Competing interests: Sheila Davies is project officer for the “Parents & Paediatricians Together ” joint programme between Contact A Family and the Royal College of Paediatrics and Child Health.