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Quality of life in spina bifida: importance of parental hope
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  • Published on:
    Re: Hope and spina bifida
    Dear Editor

    We appreciate Dr Koh's interest in our study, and his questions. We have divided these into three main arenas, in order to address them:

    (1) The philosophy & meaning of "Hope"
    Dr Koh et al pose several questions as to what Hope is. While in everyday usage, Hope stands in direct contrast to "Hopelessness" - it is unclear if this is applicable to available instruments. We chose th...

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    Conflict of Interest:
    None declared.
  • Published on:
    Hope and spina bifida
    • THHG Koh, Neonatologist and research nurses
    • Other Contributors:
      • "L Collie, D Budge"

    Dear Editor

    Our group has been evaluating ways[1] of empowering parents to promote family centred care in the neonatal intensive care unit.[2] We therefore read with interest the important article showing parental hope to be more strongly associated with the health related quality of life (HRQL) than neonatal or current physical deficits.[3]

    Hope is prevalent amongst parents and staff in the neonatal in...

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    Conflict of Interest:
    None declared.