Assessment of parental decision making in congenital heart disease, cardiomyopathy and heart transplantation: an observational study analysing decisional characteristics and preferences

Hanna J Tadros; Arwa Saidi; Alana R Rawlinson; Celine Cattier; Erik W Black; Jennifer Rackley; Leah Breault; Biagio A Pietra; Fredrick J Fricker; Dipankar Gupta

doi:10.1136/archdischild-2022-324373

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Original research

Assessment of parental decision making in congenital heart disease, cardiomyopathy and heart transplantation: an observational study analysing decisional characteristics and preferences

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Hanna J Tadros Department of Pediatrics, University of Florida, Gainesville, Florida, USA Section of Cardiology, Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA PubMed articles Google scholar articles
Arwa Saidi Department of Pediatrics, University of Florida, Gainesville, Florida, USA Congenital Heart Center, University of Florida, Gainesville, Florida, USA PubMed articles Google scholar articles
Alana R Rawlinson Department of Clinical and Health Psychology, University of Florida, Gainesville, Florida, USA PubMed articles Google scholar articles
Celine Cattier Department of Palliative Care, University of Florida, Gainesville, Florida, USA PubMed articles Google scholar articles
Erik W Black Department of Pediatrics, University of Florida, Gainesville, Florida, USA PubMed articles Google scholar articles
Jennifer Rackley Congenital Heart Center, University of Florida, Gainesville, Florida, USA PubMed articles Google scholar articles
Leah Breault Congenital Heart Center, University of Florida, Gainesville, Florida, USA PubMed articles Google scholar articles
Biagio A Pietra Department of Pediatrics, University of Florida, Gainesville, Florida, USA Congenital Heart Center, University of Florida, Gainesville, Florida, USA PubMed articles Google scholar articles
Fredrick J Fricker Department of Pediatrics, University of Florida, Gainesville, Florida, USA Congenital Heart Center, University of Florida, Gainesville, Florida, USA PubMed articles Google scholar articles
Dipankar Gupta Department of Pediatrics, University of Florida, Gainesville, Florida, USA Congenital Heart Center, University of Florida, Gainesville, Florida, USA PubMed articles Google scholar articles

Correspondence to Dr Dipankar Gupta, University of Florida College of Medicine, Gainesville, FL 32610, USA; dgupta{at}ufl.edu

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Citation

Tadros HJ, Saidi A, Rawlinson AR, et al

Assessment of parental decision making in congenital heart disease, cardiomyopathy and heart transplantation: an observational study analysing decisional characteristics and preferences

Archives of Disease in Childhood 2023;108:641-646.

Publication history

Received May 3, 2022
Accepted January 19, 2023
First published February 2, 2023.

Online issue publication

October 18, 2023

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