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Letter
First judgement on clinical ethics committees?
  1. Thor Willy Ruud Hansen1,2,
  2. Reidun Førde3
  1. 1 Pediatric and Adolescent Medicine, Rikshospitalet, University of Oslo, Oslo, Norway
  2. 2 Institute of Clinical Medicine, University of Oslo, Oslo, Norway
  3. 3 Center for Medical Ethics, University of Oslo, Oslo, Norway
  1. Correspondence to Professor emeritus Thor Willy Ruud Hansen, Pediatric and Adolescent Medicine, Rikshospitalet, University of Oslo, Oslo 0315, Norway; t.w.r.hansen{at}medisin.uio.no

https://doi.org/10.1136/archdischild-2021-321735

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    In an interesting recent article Wheeler reflects on the lack of involvement of parents of children discussed in UK hospital clinical ethics committees (CEC).1 Our CEC at Oslo University Hospital, Norway started gaining experience with patient participation in deliberations almost two decades ago.2 Previously a so-called patient representative represented a generic ‘patient perspective’, but we believed that this did not fully represent the unique aspects of individual patients.

    Initially having patients and/or kin participate in a deliberation was emotionally taxing for CEC members, accompanied …

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    Footnotes

    • Contributors TWRH drafted the manuscript. RF provided further content, and revised and approved the manuscript.

    • Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

    • Competing interests None declared.

    • Provenance and peer review Not commissioned; externally peer reviewed.