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In an interesting recent article Wheeler reflects on the lack of involvement of parents of children discussed in UK hospital clinical ethics committees (CEC).1 Our CEC at Oslo University Hospital, Norway started gaining experience with patient participation in deliberations almost two decades ago.2 Previously a so-called patient representative represented a generic ‘patient perspective’, but we believed that this did not fully represent the unique aspects of individual patients.
Initially having patients and/or kin participate in a deliberation was emotionally taxing for CEC members, accompanied …
Contributors TWRH drafted the manuscript. RF provided further content, and revised and approved the manuscript.
Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.
Competing interests None declared.
Provenance and peer review Not commissioned; externally peer reviewed.