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Limited data are available regarding cancer in low and middle-income countries (LMICs), distorting the true burden of paediatric cancer.1 A sobering statistic based on available data shows that more than 80% of children diagnosed with cancer in high-income countries survive, while fewer than 25% of children in LMICs survive.2 While access to paediatric oncological care in Ethiopia is improving, the establishment of a national paediatric cancer registry remains an unmet need. Building on our previous work, we sought to standardise patient treatment documentation within the paediatric haematology and oncology department at Tikur Anbessa Specialized Hospital (TASH) in Addis Ababa, Ethiopia, to begin formal paediatric cancer registration at TASH.3
We interviewed medical record users and observed that there was a lack of consistency in treatment documentation as well as variability in the collection of data relating to cancer diagnoses. We attempted to address these gaps in documentation through the creation of two separate sets of data …
DH and BM are joint senior authors.
Contributors All authors contributed to worksheet design and implementation. SL conducted the in-person interviews and created the first draft of the treatment worksheets and manuscript. SL performed the chart review and data analysis. All authors contributed to drafting the manuscript and approved the final version of the manuscript.
Funding This work was supported by the University of Rochester School of Medicine and Dentistry International Medicine Grant.
Competing interests None declared.
Provenance and peer review Not commissioned; internally peer reviewed.
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