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  • Ethiopian paediatric oncology registry progress report: documentation practice improvements at tertiary care centre in Addis Ababa, Ethiopia

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Ethiopian paediatric oncology registry progress report: documentation practice improvements at tertiary care centre in Addis Ababa, Ethiopia
  1. Scott Levy1,
  2. Atalay Mulu Fentie2,
  3. Kaitlyn Buhlinger3,
  4. Stephen M Clark3,
  5. David N Korones4,5,
  6. Vanessa Miller6,
  7. Thomas B Alexander3,6,
  8. Sheila Weitzman7,
  9. Wondwessen Bekele4,
  10. Julie Broas4,
  11. Aziza Shad4,8,
  12. Megan Roberts9,
  13. Michael Chargualaf3,
  14. Diriba Fufa10,
  15. Tadele Hailu11,
  16. Mulugeta Ayalew Yimer12,
  17. Mohammed Mustefa13,
  18. Abdulkadir M Said Gidey2,
  19. Ali Mamude Dinkiye2,
  20. Haileyesus Adam2,
  21. Daniel Hailu2,
  22. Benyam Muluneh9
  1. 1 School of Medicine and Dentristry, University of Rochester Medical Center, Rochester, New York, USA
  2. 2 Tikur Anbessa Specialized Hospital, Addis Ababa University, Addis Ababa, Oromia, Ethiopia
  3. 3 University of North Carolina Medical Center, University of North Carolina, Chapel Hill, North Carolina, USA
  4. 4 The Aslan Project, Washington, DC, USA
  5. 5 Department of Pediatrics, University of Rochester Medicial Center, Rochester, New York, USA
  6. 6 Lineberger Comprehensive Cancer Center, University of North Carolina System, Chapel Hill, North Carolina, USA
  7. 7 Pediatric Hematology/Oncology, Hospital for Sick Children, Toronto, Ontario, Canada
  8. 8 The Herman & Walter Samuelson Children’s Hospital at Sinai, Sinai Health System, Baltimore, Maryland, USA
  9. 9 University of North Carolina Eshelman School of Pharmacy, University of North Carolina System, Chapel Hill, North Carolina, USA
  10. 10 Jimma Medical Center, Jimma University, Jimma, Ethiopia
  11. 11 St Paul's Hospital Millennium Medical College, Addis Ababa, Oromia, Ethiopia
  12. 12 Pediatrics, Gondar College of Medical Sciences, Gondar, Ethiopia
  13. 13 Ayder Comprehensive Specialized Hospital, Mekelle University, Mekelle, Tigray, Ethiopia
  1. Correspondence to Scott Levy, University of Rochester, Rochester, NY 14642, USA; levy.scott8{at}gmail.com

https://doi.org/10.1136/archdischild-2021-322485

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    Limited data are available regarding cancer in low and middle-income countries (LMICs), distorting the true burden of paediatric cancer.1 A sobering statistic based on available data shows that more than 80% of children diagnosed with cancer in high-income countries survive, while fewer than 25% of children in LMICs survive.2 While access to paediatric oncological care in Ethiopia is improving, the establishment of a national paediatric cancer registry remains an unmet need. Building on our previous work, we sought to standardise patient treatment documentation within the paediatric haematology and oncology department at Tikur Anbessa Specialized Hospital (TASH) in Addis Ababa, Ethiopia, to begin formal paediatric cancer registration at TASH.3

    We interviewed medical record users and observed that there was a lack of consistency in treatment documentation as well as variability in the collection of data relating to cancer diagnoses. We attempted to address these gaps in documentation through the creation of two separate sets of data …

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    Footnotes

    • DH and BM are joint senior authors.

    • Contributors All authors contributed to worksheet design and implementation. SL conducted the in-person interviews and created the first draft of the treatment worksheets and manuscript. SL performed the chart review and data analysis. All authors contributed to drafting the manuscript and approved the final version of the manuscript.

    • Funding This work was supported by the University of Rochester School of Medicine and Dentistry International Medicine Grant.

    • Competing interests None declared.

    • Provenance and peer review Not commissioned; internally peer reviewed.

    • Supplemental material This content has been supplied by the author(s). It has not been vetted by BMJ Publishing Group Limited (BMJ) and may not have been peer-reviewed. Any opinions or recommendations discussed are solely those of the author(s) and are not endorsed by BMJ. BMJ disclaims all liability and responsibility arising from any reliance placed on the content. Where the content includes any translated material, BMJ does not warrant the accuracy and reliability of the translations (including but not limited to local regulations, clinical guidelines, terminology, drug names and drug dosages), and is not responsible for any error and/or omissions arising from translation and adaptation or otherwise.