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Parents’ experiences of requests for organ and tissue donation: the value of asking
  1. Anne-Sophie Darlington1,
  2. Tracy Long-Sutehall1,
  3. Duncan Randall1,
  4. Claire Wakefield2,3,
  5. Victoria Robinson1,
  6. Joe Brierley4
  1. 1 School of Health Sciences, University of Southampton, Southampton, UK
  2. 2 School of Women’s and Children’s Health, UNSW Sydney, Sydney, New South Wales, Australia
  3. 3 Kids Cancer Centre, Syndey Children’s Hospital, Sydney, NSW, Australia
  4. 4 Department of Critical Care & Paediatric Bioethics Centre, Great Ormond Street Hospital for Children, London, UK
  1. Correspondence to Dr Anne-Sophie Darlington, School of Health Sciences, University of Southampton, Highfield Campus, Southampton, SO17 1BJ, UK; a.darlington{at}soton.ac.uk

Footnotes

  • Contributors A-SD conceived the study, contributed to the literature review, provided data and carried out the qualitative data analysis. TL-S conceived the study, contributed to the literature review and provided additional data interpretation. DR and VR carried out the qualitative data collection and analysis. CW contributed to the literature review and provided additional data interpretation. JB conceived the study, provided data and provided additional data interpretation.All authors reviewed results, reviewed and contributed to the report.

  • Funding This study received no direct funding but was supported by (i) the National Institute for Health Research Great Ormond Street Hospital Biomedical Research Centre. (ii) Great Ormond St Children’s Charity. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR, the UK Department of Health. or GOSCC.

  • Competing interests None declared.

  • Ethics approval Ethical approval was gained through the University of Southampton, the UK Integrated Research Application System (15/SC/0492), the children’s hospice ethics committee and hospital R&D departments.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Patient consent for publication Not required.

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Footnotes

  • Contributors A-SD conceived the study, contributed to the literature review, provided data and carried out the qualitative data analysis. TL-S conceived the study, contributed to the literature review and provided additional data interpretation. DR and VR carried out the qualitative data collection and analysis. CW contributed to the literature review and provided additional data interpretation. JB conceived the study, provided data and provided additional data interpretation.All authors reviewed results, reviewed and contributed to the report.

  • Funding This study received no direct funding but was supported by (i) the National Institute for Health Research Great Ormond Street Hospital Biomedical Research Centre. (ii) Great Ormond St Children’s Charity. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR, the UK Department of Health. or GOSCC.

  • Competing interests None declared.

  • Ethics approval Ethical approval was gained through the University of Southampton, the UK Integrated Research Application System (15/SC/0492), the children’s hospice ethics committee and hospital R&D departments.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Patient consent for publication Not required.

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