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Management of dystonia in paediatric palliative care
  1. Thomas Slater1,
  2. Gillian Hughes2,
  3. Daniel E Lumsden1,
  4. Joanna Laddie2
  1. 1 Department of Paediatric Neurosciences, Evelina London Children’s Hospital, London, UK
  2. 2 Department of Paediatric Palliative Care, Evelina London Children’s Hospital, London, UK
  1. Correspondence to Dr Thomas Slater, Department of Paediatric Neurosciences, Evelina London Children’s Hospital, Guy’s & St. Thomas' NHS Foundation Trust, London SE1 7EH, UK; tslater{at}

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Dystonia is a challenging neurological symptom found in paediatric palliative care (PPC).1 While well defined as a movement disorder characterised by sustained or intermittent muscle contractions associated with abnormal movement and posturing, dystonia is less well recognised and identified by clinicians.2 A wide range of therapies exist but consensus is often lacking regarding choice of treatment. No studies to date have analysed differences in management of dystonia between palliative care and neurology services.

We performed a survey of practice of the PPC database at Evelina London Children’s Hospital, a non-malignant caseload covering southeast England. Specifically with regard to dystonia, documentation over 12 months (preceding July 2017) was retrospectively reviewed to assess …

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  • Contributors DEL conceived the study. TS and GH initiated the study design. TS led implementation. DEL and JL refined the study protocol and approved the final manuscript.

  • Funding This research received no specific grant from any funding agency in the public, commercial or not-for-profit sectors.

  • Competing interests None declared.

  • Provenance and peer review Not commissioned; internally peer reviewed.