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How many children and young people with life-limiting conditions are clinically unstable? A national data linkage study

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  • Twitter Follow Stuart Jarvis at @swjarvis and Lorna Fraser at @lornafraser10

  • Contributors SJ contributed to the design of the study, carried out the analysis, contributed to the interpretation of data and wrote the first draft of the manuscript. RCP made substantial contributions to the conception/design of the work, to interpretation and to revision of the manuscript. PC, BB made substantial contributions to the conception/design of the work, interpretation of the work and to revision of the manuscript. LKF conceived and designed the work and took part in the analysis and played a major role in interpretation of data. She also contributed to drafting and revision of the manuscript. All authors have approved the manuscript prior to submissions and agree to be accountable for all aspects of the work.

  • Funding This study forms part of the ChiSP project, funded by the Managed Service Network for Children and Young People with Cancer (MSNCYPC) through Children's Hospice Association Scotland.

  • Competing interests PC is employed by the funder, Children's Hospice Association Scotland.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement No data are available—the data are potentially sensitive and were accessed within the NSS eDRIS safe haven with only aggregated results disclosed after undergoing disclosure control.

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Footnotes

  • Twitter Follow Stuart Jarvis at @swjarvis and Lorna Fraser at @lornafraser10

  • Contributors SJ contributed to the design of the study, carried out the analysis, contributed to the interpretation of data and wrote the first draft of the manuscript. RCP made substantial contributions to the conception/design of the work, to interpretation and to revision of the manuscript. PC, BB made substantial contributions to the conception/design of the work, interpretation of the work and to revision of the manuscript. LKF conceived and designed the work and took part in the analysis and played a major role in interpretation of data. She also contributed to drafting and revision of the manuscript. All authors have approved the manuscript prior to submissions and agree to be accountable for all aspects of the work.

  • Funding This study forms part of the ChiSP project, funded by the Managed Service Network for Children and Young People with Cancer (MSNCYPC) through Children's Hospice Association Scotland.

  • Competing interests PC is employed by the funder, Children's Hospice Association Scotland.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Data sharing statement No data are available—the data are potentially sensitive and were accessed within the NSS eDRIS safe haven with only aggregated results disclosed after undergoing disclosure control.

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