Original articleUnderstanding the Role of Health Care Providers During the Transition of Adolescents With Disabilities and Special Health Care Needs☆
Section snippets
Transition and health care
It is important that adolescents with SHCN transition from pediatric to adult health care in a thoughtful, supported, and coordinated way. The belief that an adolescent should be shifting toward an adult care provider helps to move responsibility, decision-making, and control from the parent to the young adult and is based on the philosophy that youth are expected to mature and become more independent as they enter the adult world [8]. It is also important that the approaches used by health
The role of health in other areas of transition
Transition is more than movement from pediatric to adult health care. Rather, transition is multidimensional and involves other important areas such as employment, education, independent living, and community inclusion. However, health transition facilitates or affects transition in these other areas as well. Although the role of the health care professional in general areas of transition has focused primarily on mental health [9], the health care professional can assume an important and active
Sample
The questionnaire was mailed to 2397 parents whose children fell between the ages of 13 and 21 years and experienced a physical, developmental, behavioral/emotional, learning, or health-related disability. Parents were identified through either Portland Public Schools (a large urban school district in Oregon) or Oregon’s Title V Program. The survey was also mailed to 409 physicians identified through the Oregon Pediatric Society (state chapter of the American Academy of Pediatrics) and Oregon’s
Acknowledgements
We are grateful to Ardis Olson at Dartmouth Medical School, Mary Oschwald at Oregon Health & Science University, and Catherine Renken and Kathleen Williams at Oregon Title V for their input and assistance with the study. In addition, we would like to thank the parents and providers who participated in the study for their willingness to share their views and experiences with us.
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Cited by (124)
Caregiver reports of physician risk counseling for adolescents with special health care needs
2022, Patient Education and CounselingCitation Excerpt :For example, doctors viewed helping an adolescent learn how to self-manage their health conditions as more important than did parents [19]. Similarly, although parents of children with special healthcare needs rated discussions with providers about ‘drugs and alcohol’ and ‘sexual issues’ among the least important topics, providers felt these areas were significantly more important [19]. This view more closely aligns with those of the adolescents, who desire discussions with their provider about risky behaviors, and the option to see their provider privately to facilitate these discussions [15–17,20–22].
Transition of patients with childhood onset epilepsy: Perspectives from pediatric and adult neurologists
2020, Epilepsy and BehaviorCitation Excerpt :Transition in patients followed in pediatric neurology has been little studied in comparison with the transition in chronic diseases like diabetes mellitus [5–8] or cystic fibrosis [9–11]. This is surprising considering that cognitive impairment and progressive disability with specific healthcare needs are among the principal medical barriers for a good transition [12,13]. In a previous study regarding the user points of view, 40% of patients with Dravet syndrome estimated that the quality of the preparation was inadequate [14].
The Medical Transition from Pediatric to Adult-Oriented Care: Considerations for Child and Adolescent Psychiatrists
2018, Child and Adolescent Psychiatric Clinics of North America
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This study was supported in part by grant #93.110D from the U.S. Department of Health and Human Services, Bureau of Maternal and Child Health. The views stated in this report to do not necessarily reflect those of the funders.