Somatic function, mental health, and psychosocial adjustment of adolescents with anorectal anomalies
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Transition of care in patients with anorectal malformations: Consensus by the ARM-net consortium
2017, Journal of Pediatric SurgeryCitation Excerpt :The presence of these problems throughout childhood may impact negatively on psychosocial well-being, emotional functioning and quality of life. These important aspects should be evaluated and supported as early as possible in life and considered as key elements during the transition process [15–20]. It is known that a proportion of adolescents with ARM have significant impairment of their quality of life and anxiety, in particular, if they have active medical problems.
Long-term psychosocial consequences of surgical congenital malformations
2017, Seminars in Pediatric SurgeryCitation Excerpt :Whereas Ludman et al.,9 Ludman and Spitz,10 and Hassink et al.18 found no association between fecal incontinence and psychosocial adjustment in the longer term in ARM children and adolescents, more studies11,13–15,25 found that fecal and flatus incontinence correlated significantly with impairment of mental health, behavioral and emotional functioning, psychosocial function, and QoL. In Diseth and Emblem11 series, flatus incontinence was the significant predictor of mental health problems, whereas both fecal and flatus incontinence predicted psychosocial dysfunctioning. Studies of adults with ARM show that high lesions and fecal incontinence are related to psychosocial problems.1,21,26
Dyssynergic defecation may aggravate constipation: Results of mostly pediatric cases with congenital anorectal malformation
2015, American Journal of SurgeryPeristeen integrated transanal irrigation system successfully treats faecal incontinence in children
2014, Journal of Pediatric UrologyQualitative analysis of studies concerning quality of life in children and adults with anorectal malformations
2013, Journal of Pediatric SurgeryCitation Excerpt :Three of these 7 studies used validated QoL questionnaires [27,31,34]. All 12 studies, which did establish a correlation, used non-validated QoL questionnaires [22–25,30,35,36,39,46,47,49,50]. QoL is an entity that is dependent on many changing factors in a person's life and environment and hence research on QoL is challenging.