Conference proceedingTransition health services for youth with disabilities: A global perspective
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Cited by (29)
Spaces of well-being among young adults with physical disabilities transitioning from pediatric to adult healthcare
2018, Disability and Health JournalCitation Excerpt :Having a disability can affect well-being through physical and social spaces of capability.16 The nature of a disability itself can influence individual coping and how others form social constructions of their disability.24–27 For example, many adult healthcare providers lack knowledge about child-onset disabilities and may be unable to provide care.5–7
Continuity of care in youth services: A systematic review
2017, Children and Youth Services ReviewCitation Excerpt :Fragmentation of care is a problem mentioned in most articles, leading to discontinuity in foster care (Fontanella et al., 2015), mental health care (Ådnanes & Steihaug, 2013), adolescent drug treatment (Duroy et al., 2003; Godley, Godley, Dennis, Funk, & Passetti, 2002; Tait, Hulse, & Robertson, 2004) and residential care (Jones et al., 2007). Several populations are affected like young people experiencing homelessness and unemployment (Grace et al., 2012), transition age youth (Cappelli et al., 2014; Kim et al., 2014; Lindgren et al., 2013; Munson & Lox, 2012; Singh et al., 2008), young refugees (Colucci, Minas, Szwarc, Guerra, & Paxton, 2015) and youngsters with a disability (Bowes et al., 1995; O'Connell et al., 2003). Management continuity and informational continuity are put forward as obvious solutions to this fragmentation.
Enablers and barriers of men with Duchenne muscular dystrophy transitioning from an adult clinic within a pediatric hospital
2017, Disability and Health JournalTransition care for adolescents and families with chronic illnesses
2010, Journal of Adolescent HealthCitation Excerpt :Ineffective communication between these two can lead to patient frustration. In the last decade, the concept of better transition care model has been advocated and successfully implemented in many countries such as the United States, Canada, and Australia [17–19]. These include disease-specific transition programmes to cater for the special care needs of individual chronic illnesses [22–24].
Youth and Young Adults With Cerebral Palsy: Their Use of Physician and Hospital Services
2007, Archives of Physical Medicine and RehabilitationCitation Excerpt :This study documents high rates of utilization and clearly shows that there is a need for intensive health care support, not only for youth but also for adults who have CP. In Canada, there are few adult-oriented health services available to support this population, and the same appears true in most countries around the world based on discussion articles in the literature.19,20 One of the key areas in which there were lower visit rates for the adults, compared with the youth, was in specialist physician visits.
Transition to adult health care: Setting the stage
1995, Journal of Adolescent Health
This paper was commissioned for the working conference “Moving On: Transition from Pediatric to Adult Health Care” presented by the Center for Children with Chronic Illness and Disability, National Center for Youth with Disability, and the Keland Endowment Fund of the Johnson Foundation, September 9–11, 1994. The conference was supported, in part, by the National Institute on Disability and Rehabilitation Research Grant #H133B90012 and the Maternal and Child Health Bureau Grant #MCJ275045.