Original articlePreliminary observations on maternal rating of health of children: Data from three subspecialty clinics☆
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Longitudinal Associations between Neurodevelopment and Psychosocial Health Status in Patients with Repaired D-Transposition of the Great Arteries
2019, Journal of PediatricsCitation Excerpt :Our findings are consistent with other studies reporting superior or equivalent HRQoL in patients with D-TGA compared with published normative control groups,61 but impaired HRQoL compared with locally recruited healthy referents.13 Lower educational and socioeconomic status in the general US population, as well as inclusion of children with neurodevelopmental disabilities, may have resulted in lower parent rating of child HRQoL in the CHQ normative sample.62 In addition to a normative sample, we chose to use local healthy referents, who had neurodevelopmental outcomes and general health status superior to that of subjects with D-TGA.
Issues in Measuring Child Health
2008, Ambulatory PediatricsCitation Excerpt :That different conditions are viewed differently by families, thereby potentially altering the family response to illness, is suggested by studies that indicate that illnesses characterized by invisibility, remitting-relenting courses, and uncertain prognosis cause more distress or have children viewed as less healthy than other conditions.60,61 Likewise, families may adjust better to conditions present at birth, even when producing more disability, than conditions that emerge in a previously healthy child, as illustrated by the fact that parents of children with spina bifida rate their children as healthier than those with children with juvenile rheumatoid arthritis, despite the fact that the latter have far fewer functional limitations.61 One might hypothesize that parents of children with conditions present at birth may recalibrate what it means for their child to be healthy, or have a different developmental task than parents with a previously healthy child who develops a chronic illness.
What matters in the long term: Reflections on the context of adult outcomes versus detailed measures in childhood
2007, Seminars in Fetal and Neonatal MedicineCitation Excerpt :Although parents are fairly reliable informants regarding the health of their children, several studies have shown that their concerns may reflect the state of the parents’ own physical and mental well-being. Mothers who suffer from depression tend to perceive their children to be doing less well and they utilise significantly more health resources than mothers who are in better physical and emotional health.45 It has also been shown that parents are more consistent with their perceptions of children for the more observable aspects of their health, such as mobility or general health, than less observable and more subjective variables, such as emotion or pain.46
The relationship of SNAPPE-II score and parental perception of infant illness to parental depression in the neonatal intensive care unit
2007, Journal of Neonatal NursingCitation Excerpt :Parents rated their infant's current health status using a 4-point Likert scale ranging from excellent to poor. Several studies have used a similar question with other samples (McCormick et al., 1988; Catlett et al., 1994; Shields-Poe and Pinelli, 1997; Doucette and Pinelli, 2004; Pinelli, 2000). Parental depression was measured using the 20-item Center for Epidemiologic Studies Depression Scale (CES-D) (Devins and Orme, 1985).
Follow up of infants following discharge from the neonatal unit: Structure and process
2006, Early Human DevelopmentParental perceptions of their preschool-aged children's oral health
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This work was supported by grants from the Andrew W. Mellon Foundation and the Charles A. Dana Foundation
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Present address: Joint Program in Neonatology, Brigham and Women's Hospital, 75 Francis Street, Boston, MA 02115, U.S.A.