Psychosocial adjustment of children treated for anorectal anomalies☆,☆☆
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Cited by (56)
Medium-Term Outcomes of Antegrade Continent Enema (ACE): Cairo University Specialized Pediatric Hospital (CUSPH) Experience
2023, Journal of Pediatric SurgeryCitation Excerpt :Accordingly, the minimum point of follow up is 2 years and the maximum point is 6 years. After ethical committee approval, all patients’ data regarding demographics, indication of ACE, preoperative and postoperative QOL [12, 13, 14, 15], FI index (FII) [16], bowel symptoms follow-up sheet [17], and stooling survey [15, 18, 19, 20, 21] were evaluated. In addition, surgical technique, postoperative effect of ACE on defecation and continence, complications and revision surgery, and the use of antibiotics were evaluated using patient files, operative reports, and office notes.
Quality of life in children with pseudoincontinence after implementing a bowel management program in Egypt
2020, Journal of Pediatric SurgeryCitation Excerpt :Lifestyle alteration is scored as 0 if lifestyle has not been affected, as 1 if there are changes once per month, as 2 if changes once per week, as 3 if changes several times a week and 4 if lifestyle has changed on a daily basis [18]. We used the “social domain” questions from the QOL questionnaire [14,15,16,17] to elicit answers from the families in order to lend objectivity in quantifying the lifestyle changes. The result of the Wexner FI is called fecal incontinence index (FII) which is graded into: normal continence (0–4), mild incontinence (5–9), moderate incontinence (10–14) and severe incontinence (15–20).
Long-term psychosocial consequences of surgical congenital malformations
2017, Seminars in Pediatric SurgeryCitation Excerpt :Most of the studies of children and adolescents with ARM report more psychiatric problems, psychosocial dysfunctioning, and lower QoL than in the general population.9–17 Ludman and Spitz10 revealed that 29% had a psychiatric disorder, whereas Diseth and Emblem11 found that 58% had psychiatric disorder; mostly internalizing problems (e.g., overanxiousness, depression, withdrawal, low self-esteem, and poor body concept), together with psychosocial impairment. Kubota et al.17 reported that 59% of ARM children and adolescents had emotional and behavioral problems within clinical range, and Funakosi et al.16 found that depression was more marked in ARM adolescents than ARM children; indicating that depression increases with age.
Qualitative analysis of studies concerning quality of life in children and adults with anorectal malformations
2013, Journal of Pediatric SurgeryCitation Excerpt :The cohort size ranged between 20 and 341 patients. Twelve studies had a sample size of 50 or less [21,23,24,35,38,39,42–44,47,48,50], 8 studies between 50 and 100 [22,25–27,30,36,46,49], 3 studies between 100 and 200 [37,40,41], and 7 studies had a sample size over 200 [28,29,31–34,45]. Four of these studies had a longitudinal design and more than one measure moment [32,33,39,50].
Long-term disease-specific quality of life in children and adolescent patients with ARM
2012, Journal of Pediatric Surgery
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Presented at the 41st Annual International Congress of the British Association of Paediatric Surgeons, Rotterdam, The Netherlands, June 29–July 1, 1994.
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This research was funded by a grant from the Leverhulme Trust.