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Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory™

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Abstract

The aim of the study was to evaluate health-related quality of life (HRQoL) of Hungarian children attending a pediatric cardiology outpatient unit with the Pediatric Quality of Life Inventory™ (PedsQL™) questionnaire. The PedsQL™ Generic Core Scales and Cardiac Module were administered to 254 families including 195 children during a pediatric cardiology outpatient visit, and 525 families including 373 children from the general population were examined by the PedsQL™ Generic Core Scale by a postal survey. The relationships between PedsQL™ scores and patient characteristics were analyzed. Hungarian children attending a cardiology outpatient unit as an entire group and patients with severe heart diseases report significantly lower physical functioning than the general population, while more HRQoL dimensions are negatively affected according to the parents' opinion. Children with congenital heart disease of mild and great complexity also report impaired psychosocial functioning. HRQoL impairment is concentrated to the age of 5–7 years. Comparing our results with previous ones on U.S. pediatric cardiologic samples, we found significantly lower scores mainly for the physical functioning and heart symptoms subscales. This HRQoL study with an internationally well-validated instrument on children with heart disease in a Central European country highlights certain aspects of the health-care system and brings the possibility for the assessment of pediatric cardiology outcomes in a more comprehensive way.

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Acknowledgments

We are grateful to all the children and their parents who willingly contributed to this study. We also thank the devoted work of Erzsébet Kovács and Mariann Kiss who had an important role in the implementation of the study.

Competing interests

Dr. Varni holds the copyright and the trademark for the PedsQL™ and receives financial compensation from the Mapi Research Trust in France, which is a nonprofit research institute that charges distribution fees to for-profit companies that use the Pediatric Quality of Life Inventory™.

The other authors declare that they have no competing interests.

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Authors and Affiliations

  1. Department of Pediatrics, University of Debrecen Medical School and Health Science Center, Nagyerdei krt. 98, Debrecen, 4012, Hungary

    Andrea Berkes, István Pataki & Gábor Mogyorósy

  2. Department of Pediatrics, College of Medicine, Department of Landscape Architecture and Urban Planning, College of Architecture, Texas A&M University, College Station, TX, USA

    James W. Varni

  3. Hygiene and Infection Control Services, Kenezy Hospital, Debrecen, Hungary

    László Kardos

  4. Department of Behavioural Sciences, University of Debrecen Medical and Health Science Center, Debrecen, Hungary

    Csilla Kemény

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  1. Andrea Berkes
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  2. James W. Varni
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  3. István Pataki
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  4. László Kardos
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  5. Csilla Kemény
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  6. Gábor Mogyorósy
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Correspondence to Andrea Berkes.

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Berkes, A., Varni, J.W., Pataki, I. et al. Measuring health-related quality of life in Hungarian children attending a cardiology clinic with the Pediatric Quality of Life Inventory™. Eur J Pediatr 169, 333–347 (2010). https://doi.org/10.1007/s00431-009-1059-0

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  • DOI: https://doi.org/10.1007/s00431-009-1059-0

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