Recruitment
| Group | Study site | Approaches | Responses | Consents | Interviews | Total |
| Parents | Site 1 | 71 | 11 | 8 | 8 | 14 |
| Site 2 | 40 | 3 | 3 | 3 | ||
| Site 3 | 20 | 3 | 3 | 3 | ||
| Doctors | Site 1 | 10 | 6 | 4 | 4 | 10 |
| Site 2 | 5 | 3 | 3 | 3 | ||
| Site 3 | 4 | 3 | 3 | 3 | ||
| Nurses | Site 1 | 20 | 8 | 6 | 6 | 8 |
| Site 2 | 10 | 3 | 2 | 2 | ||
| Clinical ethics committee | Site 1 | 10 | 5 | 5 | 5 | 7 |
| Site 2 | (44)* | 4 | 2 | 2 | ||
| Total | 39 |
*At site 2, the committee chair circulated the details of the study to members and invited them to respond directly to the chief investigator.