Table 1

Recruitment targets for key stakeholder groups

Stakeholder groupPanelRecruitment targets
Paediatric surgeonsNeonatal panelSurgeons registered with the British Association of Paediatric Surgeons (BAPS) as having an interest in HD surgery.
Centre leads for the British Association of Paediatric Surgeons Congenital Anomalies Surveillance System (BAPS-CASS) nationwide HD cohort study.
Members of the United Kingdom Paediatric Colorectal Club
Editors of the Journal of Paediatric Surgery and Paediatric Surgery International
Members of BAPS with a self-declared interest in the management of infants with HD
Named experts from prominent HD treatment centres and research groups.
NeonatologistsNeonatal panelMembers of the British Association of Perinatal Medicine with a self-declared interest in the management of infants with HD
Members of the Royal College of Paediatrics and Child Health with a self-declared interest in the management of infants with HD
Paediatric gastroenterologistsNon-neonatal panelMembers of the British Society of Paediatric Gastroenterology, Hepatology and Nutrition with a self-declared interest in the management of infants with HD
Specialist nursesNon-neonatal panelMembers of the paediatric stoma nurses group
People with HD and parents of children with HDPersonal experience panelParents of children with HD who are members of the Parent Advisory Group established by the National Perinatal Epidemiology Unit
Members of the Hirschsprung's and Motility Disorders Support Network
Members of the CHAMPS appeal HD support group
  • Parents of children treated by members of the SMG and members of the BAPS-CASS Steering Committee.

  • HD,¬†Hirschsprung's disease; SMG, study management group.