Summary of interviewee's reports of home monitoring within individual tertiary centres
| Tertiary centre | Formal HMP? | Eligibility for formal HMP or closer monitoring at home | Routine measurements | Measurements taken by | Breach criteria | Specialist centre monitoring | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Frequency | Saturations | Weight | Parent | Health visitor | Community nurse | None | Standard | Individualised | Regular calls from CNS | Parents call CNS | High-risk clinic | |||
| Centre A | ✓ | Single ventricle | Daily | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
| Centre B | × | Single ventricle | Weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | |||||
| Centre C | ✓ | Single ventricle+shunts | Weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | |||||
| Centre D | ✓ | Single ventricle, but flexible | Weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ||||||
| Centre E | × | Single ventricle+shunts | Daily | ✓ | ✓ | ✓ | ✓ | |||||||
| Centre F | ✓ | Single ventricle+shunts | Daily | ✓ | ✓ | ✓ | ✓ | ✓ | ||||||
| Centre G | ✓ | HLHS only | Weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
| Centre H | × | Single ventricle+shunt dependent | Weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | |||||
| Centre I | ✓ | HLHS only | Daily | ✓ | ✓ | ✓ | ✓ | ✓ | ||||||
| Centre J | × | All shunt-dependent | Weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ||||||
| Centre K | ✓ | Single ventricle+shunts | Twice weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | |||||
| Centre L | ✓ | Single ventricle | Twice weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | ||||
| Centre M | ✓ | HLHS only | 1–2/week | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | |||||
| Centre N | × | HLHS only | Weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | |||||
| Centre O | × | Follow protocol of surgical centres | ✓ | |||||||||||
| Centre P | × | Clinical judgement | Weekly | ✓ | ✓ | ✓ | ✓ | ✓ | ✓ | |||||
CNS, clinical nurse specialist; HLHS, hypoplastic left heart syndrome; HMP, home monitoring programmes; shunt, systemic-to-pulmonary arterial shunt; single ventricle, functionally single ventricle.