(a) Self-report of pain by young people | (b) Parent-report of their child's pain | |||||||||||||||
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Walking ability (GMFCS) | Walking ability (GMFCS) | |||||||||||||||
All | I | II | III | IV | V | p Value | All | I | II | III | IV | V | p Value | |||
N | % | % | % | % | % | % | N | % | % | % | % | % | % | |||
Site of pain (in previous week) | ||||||||||||||||
Headaches | 423 | 34 | 39 | 38 | 36 | 18 | 19 | 0.004 | 629 | 30 | 33 | 40 | 24 | 31 | 20 | 0.002 |
Stomach | 422 | 26 | 26 | 30 | 25 | 24 | 27 | 0.49 | 634 | 32 | 24 | 33 | 23 | 42 | 44 | <0.001 |
Back | 420 | 27 | 27 | 24 | 28 | 22 | 41 | 0.12 | 632 | 25 | 19 | 20 | 23 | 31 | 38 | <0.001 |
Arms | 416 | 18 | 19 | 20 | 14 | 12 | 17 | 0.10 | 630 | 14 | 9 | 17 | 13 | 13 | 22 | 0.020 |
Hips | 421 | 14 | 13 | 12 | 14 | 18 | 22 | 0.07 | 635 | 21 | 9 | 16 | 17 | 28 | 44 | <0.001 |
Legs | 413 | 40 | 39 | 41 | 47 | 40 | 37 | 0.19 | 634 | 43 | 37 | 48 | 49 | 48 | 41 | 0.07 |
Operation sites | 411 | 10 | 5 | 12 | 14 | 16 | 17 | <0.001 | 624 | 14 | 5 | 16 | 21 | 19 | 21 | <0.001 |
Circumstances of pain (in previous week) | ||||||||||||||||
At rest from spasms | 413 | 13 | 10 | 13 | 16 | 20 | 14 | 0.04 | 632 | 17 | 8 | 16 | 16 | 18 | 35 | <0.001 |
At rest, from splints or restraints | 410 | 12 | 8 | 13 | 21 | 18 | 6 | 0.03 | 625 | 20 | 9 | 19 | 25 | 31 | 29 | <0.001 |
On swallowing or feeding | 410 | 3 | 2 | 3 | 4 | 4 | 6 | 0.12 | 627 | 6 | 4 | 3 | 1 | 11 | 11 | <0.001 |
On moving | 414 | 28 | 19 | 36 | 35 | 29 | 42 | <0.001 | 634 | 35 | 19 | 35 | 45 | 52 | 42 | <0.001 |
On changing or dressing | 413 | 5 | 2 | 3 | 4 | 8 | 19 | <0.001 | 627 | 15 | 4 | 6 | 12 | 26 | 38 | <0.001 |
In bed at night | 415 | 17 | 16 | 14 | 11 | 22 | 32 | 0.02 | 633 | 22 | 11 | 15 | 23 | 32 | 38 | <0.001 |
Short unexpected pains | 413 | 30 | 27 | 41 | 28 | 22 | 33 | 0.25 | 627 | 25 | 19 | 24 | 22 | 29 | 36 | <0.001 |
Pain during therapy (in previous year) | ||||||||||||||||
During physiotherapy | 339 | 45 | 38 | 42 | 50 | 62 | 50 | 0.002 | 505 | 50 | 40 | 51 | 46 | 58 | 60 | <0.001 |
During other therapy | 160 | 9 | 4 | 11 | 14 | 17 | 6 | 0.32 | 281 | 18 | 8 | 17 | 17 | 22 | 29 | 0.003 |
During botulinum injections | 142 | 26 | 22 | 28 | 35 | 21 | 36 | 0.42 | 233 | 29 | 16 | 33 | 44 | 34 | 29 | 0.32 |
p, Significance of trend of pain over levels of walking ability, estimated using ordinal regression which retained all six categories of pain.
N, Number included: data were unavailable if Gross Motor Function Classification System (GMFCS) or severity of pain were not reported or if the young person had not received the relevant therapy.
%, Percentage with severity of pain from very mild to very severe.
*Presence of pain was defined by severity in any category from very mild to very severe.