Chromosomal CNS CNS progressive Cardiac Metabolic MPS Duchenne muscular dystrophy Spinal muscular atrophy CNS oncology Oncology Other
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Group 1: Life-threatening conditions for which curative treatment may be feasible but can fail; where access to palliative care services may be necessary when treatment fails (eg, cancer, irreversible organ failure) Group 2: Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal activities (eg, cystic fibrosis) Group 3: Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years (eg, Batten disease, MPS, muscular dystrophy) Group 4: Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death (eg, severe cerebral palsy, multiple disabilities such as following brain or spinal cord insult)
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