Case histories of 39 children requiring ventilation via tracheostomy
| Child | Age LTV planned (y) | Time to discharge or death in hospital (y) | Age now (Nov 2002) (y) | Diagnosis | Respiratory outcome | LTV at home (y) |
|---|---|---|---|---|---|---|
| *Successfully discharged to a home environment but readmitted to TCU due to deterioration in the underlying medical condition. | ||||||
| TBM, tracheobronchomalacia; CNS, central nervous system; CLD, chronic lung disease; HOCM, hypertrophic obstructive cardiomyopathy; NMD, neuromuscular disease; RU, respiratory unit; DGH, district general hospital; TCU, transitional care unit; LTV, long term ventilation; CCHVS, congenital central hypoventilation syndrome. | ||||||
| 1 | 14.0 | 3.5 | 22.6 | Metabolic disorder | Home LTV 24/24 | 4.3 |
| 2 | 5.0 | 2.3 | 12.1 | Trauma | Fostered LTV nocte | 5.1 |
| 3 | 1.0 | 0.8 | – | Down’s acute illness | Died DGH | – |
| 4 | 0.8 | 2.1 | – | CNS/spinal abnormality | Died TCU | – |
| 5 | 0.9 | 0.8 | 7.1 | TBM | Home tracheostomy only | 0.0 |
| 6 | 6.0 | 2.6 | 12.8 | Down’s trauma | Home LTV nocte | 3.7 |
| 7 | 0.8 | 0.7 | – | Ex-prem CLD TBM | Died home | 4.1 |
| 8 | 1.0 | 0.7 | 7.2 | Ex-prem CLD TBM | Home decannulated | 2.0 |
| 9 | 0.8 | 1.2 | 6.9 | NMD | Home LTV nocte | 4.8 |
| 10 | 1.8 | 1.6 | 7.5 | Ex-prem CLD TBM | Home decannulated | 2.3 |
| 11 | 0.6 | 0.8 | – | Noonan HOCM TBM | Died home | 1.3 |
| 12 | 1.5 | 0.4 | 6.5 | Ex-prem CLD | Home decannulated | 1.2 |
| 13 | 0.8 | 1.1 | 4.7 | 3C syndrome | Home decannulated | 2.3 |
| 14 | 1.2 | 0.9 | 5.0 | TBM | Home decannulated | 1.2 |
| 15 | 0.8 | 1.3 | 4.8 | Ex-prem CLD TBM | Home decannulated | 1.8 |
| 16 | 0.5 | 0.7 | 4.5 | NMD | Home LTV 24/24 | 3.4 |
| 17 | 0.3 | 0.4 | 4.3 | CCHVS | Home LTV nocte | 3.6 |
| 18 | 1.5 | 0.4 | 5.5 | CLD TBM (ECMO) | Home decannulated | 1.6 |
| 19 | 0.8 | 0.5 | 4.3 | TBM | Home tracheostomy only | 1.4 |
| 20 | 1.5 | 0.7 | 4.7 | Upper airway abnormality | Home decannulated | 0.4 |
| 21 | 0.3 | 2.0 | 3.5 | NMD | Home LTV 24/24 | 1.3 |
| 22 | 2.0 | 1.3 | 5.1 | NMD | Fostered LTV 24/24 TCU* | 1.8 |
| 23 | 11.0 | 0.7 | 14.7 | Velocardiofacial syndrome | Home LTV nocte | 2.4 |
| 24 | 6.0 | 2.8 | – | NMD | Died TCU | – |
| 25 | 1.0 | 0.8 | 4.0 | Ex-prem CLD TBM | Home decannulated | 1.7 |
| 26 | 1.0 | 0.3 | 3.9 | CLD | Home tracheostomy only | 0.0 |
| 27 | 0.9 | 0.7 | 3.5 | NMD | Home LTV 24/24 | 1.9 |
| 28 | 0.3 | 1.0 | 2.7 | Metabolic disorder | Home decannulated | 0.3 |
| 29 | 0.6 | 0.9 | 2.6 | TBM | Home decannulated | 0.5 |
| 30 | 3.0 | 1.5 | 5.0 | Trauma | Home LTV 24/24 | 0.3 |
| 31 | 1.0 | 0.4 | – | TBM | Died TCU | – |
| 32 | 0.6 | 0.9 | – | TBM | Died home | 0.1 |
| 33 | 1.0 | 0.3 | 2.2 | Myofibromatosis | Home decannulated | 0.4 |
| 34 | 0.8 | 0.7 | 1.5 | Ex-prem CLD TBM | Home LTV nocte | 0.2 |
| 35 | 1.5 | – | 5.6 | NMD | DGH LTV 24/24 | 0.0 |
| 36 | 0.5 | – | 1.0 | Ex-prem CLD TBM | TCU nocte | 0.0 |
| 37 | 0.3 | – | 1.3 | Noonan HOCM TBM | TCU 24/24 | 0.0 |
| 38 | 0.7 | – | 0.8 | Ex-prem CLD TBM | RU 24/24 | 0.0 |
| 39 | 0.6 | – | 1.6 | Ex-prem CLD | TCU 24/24 | 0.0 |