Number overall (prevalence per 10000)*  278 (14.9)  195 (10.5)  94 (5.0) 
Number male (%)  230 (83%)  158 (81%)  81 (86%) 
Number with regression (%)†  75 (27%)  43 (23%)  2 (2%) 
Number with bowel symptoms (%)  49 (18%)  32 (16%)  9 (10%) 
   
Median age in months at regression (IQR)  18 (14–20)  20 (18–26)  40 (2 cases, at 15, 65) 
Numbers  74  43  2 

Median age in months at parental concern (IQR)  18 (14–24)  22 (16–30)  28 (20–42) 
Numbers  262  179  85 

Median age in months at provisional diagnosis (IQR)  35 (30–41)  44 (34–64)  74 (56–115) 
Numbers  273  191  87 

Median age in months at final diagnosis (IQR)  40 (34–48)  51 (40–78)  97 (70–125) 
Numbers  266  171  89 