Clinical features and change in wellbeing, pain, analgesic intake, and mobility before and during APD treatment
| Wellbeing (10 degree scale) | Pain (days/month) | Analgesics (days/month) | Ambulation 9 (and 5) degree scale | |||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Patient no. | Type | Height at start (cm) | Age (y) | Years of treatment | At start | 2 years | Latest rec | At start | 2 years | Latest rec | At start | 2 years | Latest rec | At start | 2 years | Latest rec |
| *Latest record is 2 years after start of treatment. | ||||||||||||||||
| **No first sample obtained. | ||||||||||||||||
| 1 | IV | 45.0 | 0.6 | 2 | 5 | 9 | 9* | ** | ** | ** | 0 | 0 | 0* | 9 (0) | 7 (0) | 7 (0)* |
| 2 | IV | 62.5 | 1.1 | 2.5 | 5 | 7.5 | 8.5 | 30 | 0 | 0 | 0 | 0 | 0 | 9 (0) | 2 (3) | 1 (4) |
| 3 | IV | 64.0 | 1.2 | 2 | 5 | 7.5 | 7.5* | ** | ** | ** | 0 | 0 | 0* | 8 (0) | 2 (3) | 2 (3)* |
| 4 | III | 69.0 | 2.7 | 4 | 1.5 | 7.5 | 8.5 | 30 | 0 | 0 | 0 | 0 | 0 | 9 (0) | 7 (0) | 6 (2) |
| 5 | III | 68.0 | 3.1 | 3 | 5 | 8 | 10 | 12 | 0 | 0 | 3 | 0 | 0 | 8 (0) | 6 (2) | 2 (3) |
| 6 | I | 89.5 | 3.7 | 4 | 5 | 8 | 8 | 10 | 1 | 0 | 10 | 1 | 0 | 7 (0) | 2 (3) | 2 (3) |
| 7 | IV | 83.5 | 3.9 | 3 | 7 | 10 | 10 | 7 | 0 | 0 | 4 | 0 | 0 | 7 (0) | 6 (1) | 6 (1) |
| 8 | III | 81.0 | 3.9 | 2 | 3 | 9 | 9* | 30 | 0 | 0* | 5 | 0 | 0* | 8 (0) | 7 (1) | 7 (1)* |
| 9 | IV | 94.5 | 4.6 | 2.5 | 5 | 8 | 8.5 | 20 | 0 | 0 | 5 | 0 | 0 | 6 (1) | 2 (2) | 2 (2) |
| 10 | IV | 104.0 | 6.4 | 2 | 5 | 10 | 10* | 5 | 0 | 0* | 0 | 0 | 0* | 7 (1) | 6 (2) | 6 (2)* |
| 11 | III | 74.0 | 7.0 | 3.5 | 3 | 8 | 9.5 | 30 | 2 | 0 | 0 | 0 | 0 | 9 (0) | 8 (0) | 8 (0) |
| 12 | I | 103.0 | 7.3 | 3 | 2 | 8.5 | 8.5 | 30 | 1 | 1 | 17 | 2 | 0 | 9 (0) | 7 (0) | 7 (0) |
| 13 | IV | 90.0 | 8.6 | 3 | 5 | 9 | 9 | 30 | 2 | 0 | 4 | 0 | 0 | 8 (0) | 6 (1) | 6 (1) |
| 14 | I | 114.0 | 9.0 | 2 | 5 | 8 | 8* | 30 | 0 | 0* | 3 | 0 | 0* | 4 (2) | 2 (2) | 2 (2)* |
| 15 | IV | 132.5 | 10.8 | 2.5 | 5 | 8 | 8* | 15 | 0 | 0 | 2 | 0 | 0* | 8 (0) | 6 (1) | 6 (1)* |
| 16 | IV | 157.0 | 10.8 | 2 | 4 | 7 | 7* | 30 | 30 | 30* | 30 | 0 | 0* | 1 (4) | 1 (4) | 1 (4)* |
| 17 | IV | 129.0 | 11.0 | 2 | 4.5 | 10 | 10* | 28 | 0 | 0* | 0 | 0 | 0* | 6 (1) | 6 (1) | 6 (1) * |
| 18 | III | 90.5 | 11.7 | 2 | 4.5 | 8 | 8* | 30 | 0 | 0* | 0 | 0 | 0* | 8 (0) | 7 (0) | 7 (0)* |
| 19 | III | 90.0 | 13.0 | 3 | 2 | 7.5 | 7.5 | 30 | 30 | 30 | 0 | 0 | 0 | 9 (0) | 9 (0) | 9 (0) |
| 20 | I | 136.5 | 13.3 | 2 | 4.5 | 9.5 | 9.5* | 20 | 0 | 0* | 3 | 0 | 0* | 1 (4) | 1 (4) | 1 (4)* |
| 21 | III | 99.0 | 13.6 | 9 | 1.5 | 9.5 | 9.5 | 30 | 0 | 0 | 3 | 0 | 0 | 9 (0) | 9 (0) | 9 (0) |
| 22 | III | 78.5 | 14.0 | 3 | 3 | 8.5 | 8.5 | 30 | 0 | 0 | 5 | 0 | 0 | 9 (0) | 8 (0) | 8 (0) |
| 23 | I | 147.6 | 14.2 | 3 | 3.5 | 7 | 7.5 | 30 | 30 | 5 | 30 | 3 | 0 | 2 (2) | 2 (2) | 2 (2) |
| 24 | IV | 132.5 | 14.9 | 2 | 3.5 | 8 | 8* | 30 | 0 | 0* | 0 | 0 | 0* | 8 (1) | 6 (3) | 6 (3)* |
| 25 | III | 105.5 | 16.0 | 7 | 3 | 7.5 | 9 | 30 | 3 | 0 | 0 | 0 | 0 | 9 (0) | 6 (1) | 6 (1) |
| 26 | IV | 131.0 | 16.3 | 2 | 4 | 9 | 9* | 30 | 0 | 0* | 0 | 0 | 0* | 8 (0) | 6 (1) | 6 (1)* |
| 27 | III | 105.0 | 17.1 | 4 | 6.5 | 8.5 | 9 | 10 | 0 | 0 | 5 | 0 | 0 | 8 (0) | 2 (2) | 2 (2) |
| 28 | I | 138.0 | 18.0 | 5 | 4 | 6 | 7 | 30 | 30 | 30 | 2 | 0 | 0 | 3 (3) | 3 (3) | 3 (3) |
| Mean | 100.5 | 9.2 | 3.1 | 4.1 | 8.3 | 8.6 | 24.5 | 5 | 3.7 | 4.7 | 0.2 | 0 | 7 (0.7) | 5.1 (1.5) | 4.9 (1.6) | |
| Median | 96.8 | 9.9 | 2.8 | 4.5 | 8 | 8.5 | 30 | 0 | 0 | 2.5 | 0 | 0 | 8 (0) | 6 (1.0) | 6 (1.5) | |