5–12 years (%) | 13–20 years (%) | |
Bladder | ||
Independent without catheter | 10 | 8 |
Independent with catheter | 44 | 66 |
Needs help | 47 | 26 |
Bowel | ||
Independent (no enemas etc) | 32 | 32 |
Independent, needing enemas | 15 | 24 |
Needs help with bowels | 53 | 43 |
Mobility | ||
Walks everywhere, no aids | 18 | 12 |
Walks with aids | 33 | 30 |
Household walker and wheelchair | 12 | 16 |
Full wheelchair | 37 | 42 |
Number of operations | ||
0 | 2 | 3 |
1–3 | 29 | 13 |
4–5 | 23 | 24 |
6–10 | 38 | 30 |
11–20 | 9 | 24 |
21–30 | 0 | 6 |
Maximum number of operations | 20 | 30 |
Number of shunt revisions | ||
No shunt | 50 | 33 |
1–4 revisions | 40 | 51 |
>4 revisions | 10 | 16 |