Table 1

Patient details

	Year of presentation	Birth weight and gestation	Sex and current age	Onset of symptoms	Age at presentation	Age at biopsy
1	1987	3.22 kg	Female	10 weeks	7 months	3.5 years
		Term	12 years
		50th centile
2	1987	3.8 kg	Male	Birth	3 months	2.5 years
		Term	11 years
		90th centile
3	1988	3.2 kg	Male	Birth	5 weeks	7 weeks
		Term	11 years
		10th centile
4	1989	1.8 kg	Male	4 weeks	9 weeks	10 weeks
		34 weeks	10 years
		50th centile
5	1990	2.2 kg	Male	Birth	5 months	6 months
		Term	9 years
		10th centile
6	1992	1.68 kg	Male	3 months	9 months	9 months
		34 weeks	7 years
		50th centile
7	1993	1.24 kg	Male	Birth	Birth	9 months
		28 weeks	6 years
		50th centile
8	1994	1.42 kg	Male	2 months	16 months	4 years
		33 weeks	6 years
		3rd centile
9	1995	3.31 kg	Male	Birth	5 months	No histology
		Term	4 years
		50th centile
10	1995	3.5 kg	Female	5 months	6 months	6 months
		Term	4 years
		50th centile
11	1997	3.31 kg Term	Female	Birth	9 months	10 months
		50th centile	2 years