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Pilot study of a novel education programme for 11-16 year olds with Type 1 Diabetes Mellitus: the KICk-OFF course
  1. Helen Waller
  1. University of Sheffield, United Kingdom
    1. Christine Eiser (c.eiser{at}sheffield.ac.uk)
    1. University of Sheffield, United Kingdom
      1. Julie Knowles
      1. School of Medicine and Bioscience, University of Sheffield, United Kingdom
        1. Nicola Rodgers
        1. Sheffield Children’s Foundation NHS Trust, United Kingdom
          1. Sally Wharmby
          1. Sheffield Children’s Foundation NHS Trust, United Kingdom
            1. Simon Heller
            1. School of Medicine and Bioscience, University of Sheffield, United Kingdom
              1. Hall Catherine
              1. Royal Manchester Children’s Hospital, United Kingdom
                1. Sue Greenhalgh
                1. Royal Manchester Children’s Hospital, United Kingdom
                  1. Tracey Tinklin
                  1. Derbyshire Children’s Hospital, United Kingdom
                    1. Carol Metcalfe
                    1. Derbyshire Children’s Hospital, United Kingdom
                      1. Elaine Millard
                      1. University of Sheffield, United Kingdom
                        1. Vanessa Parkyn
                        1. Sheffield Children’s Foundation NHS Trust, United Kingdom
                          1. Mark Denial
                          1. Sheffield Children’s Foundation NHS Trust, United Kingdom
                            1. Katherine Price
                            1. Sheffield Children’s Foundation NHS Trust, United Kingdom

                              Abstract

                              Aims: To pilot an education programme (KICk-OFF) for children and adolescents with Type 1 diabetes mellitus (DM). Evaluation included i) independent assessment of curriculum quality, ii) acceptability to families; and iii) possible impact on standardised outcome measures (HbA1c, BMI, diary reports of hypoglycaemia, quality of life (QOL)).

                              Methods: 48 children, aged 11-16 years (mean age = 13.60 „b 1.36 years), were recruited from 3 UK centres. Six 5-day outpatient courses were conducted teaching the skills of carbohydrate counting and insulin dose adjustment. Semi-structured interviews were conducted with children and parents pre- and post-course. Glycaemic control (HbA1c), body mass index (BMI) and frequency of hypoglycaemia were assessed at pre-course, 3- and 6-months post-intervention. QOL was assessed at pre-course, 2 weeks, 3- and 6-months.

                              Results: Educational evaluation indicated course format was appropriate and consistent. Parent and child interviews suggested that pre-course expectations were largely met. There were no changes in HbA1c, BMI or episodes of hypoglycaemia, but children and parents reported improved QOL (p<0.05).

                              Conclusions: KICK-OFF was well-received by children and parents and was associated with improved QOL. In this small pilot study glycaemic control did not change but findings provide justification for a future randomised controlled trial (RCT) involving a revised curriculum, larger study population including a control group and longer follow-up.

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