Article Text

PS-127 Child Disability Announcement: Parents’ Impact
  1. N Hentati1,
  2. A Bouraoui1,
  3. H Ayadi2,
  4. A Ben Thabet1,
  5. A Gargouri1
  1. 1Neonatology, CHU Hédi Chaker Sfax Tunisia, Sfax, Tunisia
  2. 2Child Psychiatry, CHU Hédi Chaker Sfax Tunisia, Sfax, Tunisia

Abstract

Introduction The announcement of a disability in a child or infant is too delicate because it is crucial for the future of the child and his family.

Materials and methods We conducted a descriptive and analytical study about parents of 83 children with disabilities, followed in the neonatal unit of Sfax and supported in one of the associations for the disabled.

Semi-structured interviews were conducted by a psychiatrist or psychologist to complete a questionnaire.

Results The paediatrician was the first preacher of disability in 48% of cases. This announcement took place at the outpatient in 78% of cases during the 40th day consultation in more than two thirds of cases. The mother was lonely during the announcement in 53% of cases. Talks criminalising the parents in the aetiology of disability were present in one third of cases and those downplaying the role of parents in the care were noted in a quarter of cases.

The immediate experience of the parents was dominated by anxiety in 62.5% of cases and depressive symptoms in third of cases.

Contributing factors to these situations were:

- The male child

- Talks criminalising parents in the aetiology of disability

- trivialising attitude

- A long conversation

- An announcement in consultation

Conclusion The announcement of disability requires much more interest in our region. Our purpose is to translate a message of hope in steed of drama.

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