Introduction ADHD is complex condition associated with many co morbidities. Limited data are available on the relationship between treatment efficacy and satisfaction in atypical care setting with ADHD patients. Measuring treatment satisfaction in ADHD is valuable part of treatment individualization.
Aim To assess parent satisfaction with our ADHD services
To assess the treatment outcome of ADHD patients.
Methodology A survey of parents with ADHD children. A postal questionnaires asking about our services in line of NICE guideline, with two other set of Q’s, strength and difficulties (SADQ) & Connor Q were sent to 100 patients diagnosed with ADHD
Results The response rate was 47%, 87%(41) male and 13% female, with ratio 7:1.
43% were above 10 year of age, 54% were diagnosed before age of 10. 40% had co morbidities. 48.9% of children had special educational statement and 65.9% were recipient of disability living allowance.
91%(43) were satisfied with the information we provided them about ADHD. 72% found information helpful, 65% took the behavioural therapy. 41% attended behavioural therapy found it helpful. only 32% attended psycho educational ADHD parenting course. 25% were seen by child and adolescents psychiatrist due to co morbidities.
93% were given information about medications, 90% (42)were on medication, and 74.5%(35) were using first line of medication. 50% of children experienced some form of side effects.
Outcome measurment of the treatment in parents view, 75% seen improvement in child’s behaviour. 68% had behavioural improvement at school, 59% were progressing well at school post treatment, and 53% seen improvement at home.
Using validated Q, SADQ scoring showed some improvement, in 24% post treatment versus 21% pre treatment, in 55% we had no previous data available to compare.
Conclusion NICE & European guidelines emphasises the use of person centred and individual approach. Measuring treatment satisfaction in ADHD is a valuable part of treatment individualization.
Most parents were satisfied with our management, however the behavioural therapy were only offered to 72% as the behavioural therapy & psychosocial training options only fully developed in last 2 years, since this survey every newly diagnosed patient will be offered these options.
Using rating scales and Q was not helpful for measuring the out come, for various reasons. However we believe this could be done in a better way with bigger samples including school / young peoples view.