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Arch Dis Child 98:419-424 doi:10.1136/archdischild-2012-301893
  • Original article

Characteristics influencing location of death for children with life-limiting illness

  1. Ross Drake1
  1. 1Starship Palliative Care Service, Starship Children's Health, Auckland City Hospital, Auckland, New Zealand
  2. 2Northern Clinical School, Greenwich Hospital, The University of Sydney, NSW 2006, Australia
  1. Correspondence to Dr Emily Chang, Starship Palliative Care Service, Starship Children's Health, Auckland City Hospital, Private Bag, 92024, Auckland 1142, New Zealand; emschang{at}yahoo.co.nz
  • Received 20 February 2012
  • Revised 16 December 2012
  • Accepted 22 March 2013
  • Published Online First 18 April 2013

Abstract

Objective To determine whether demographic and diagnostic characteristics were associated with location of death in a series of children with life-limiting illnesses.

Design A population-level case series was carried out by reviewing mortality records. Sociodemographic characteristics, diagnosis and referral to paediatric palliative care (PPC) were analysed for association with location of death.

Setting New Zealand

Participants Children and young people aged 28 days–18 years who died from a life-limiting illness between 2006 and 2009 inclusive.

Main outcome measures Location of death—home, hospital, other.

Results Of 494 deaths, 53.6% (256/494) died in hospital and 41.9% (203/494) died at home. Asian (OR=2.66, 95% CI 1.17 to 6.04) and Pacific children (OR=2.22, 95% CI 1.15 to 4.29) had an increased risk of death in hospital compared with European children, while children with cancer (adjusted OR=0.48, 95% CI 0.3 to 0.75) and children referred to the PPC service (adjusted OR=0.60, 95% CI 0.38 to 0.96) had a decreased risk. Population-attributable risk for referral to the PPC service was 28.2% (95% CI 11.25 to 47.75).

Conclusions Most children in New Zealand with a life-limiting illness die in hospital with a significant influence resulting from ethnic background, diagnosis and referral to the PPC service. These findings have implications for resourcing PPC services and end-of-life care.