Article Text

PDF
Full, shared and hybrid paediatric care for cystic fibrosis in South and Mid Wales
  1. Iolo Doull1,
  2. Hazel Evans2,
  3. South and Mid Wales Paediatric Cystic Fibrosis Network
  1. 1Respiratory/Cystic Fibrosis Unit, Children's Hospital for Wales, Cardiff, UK
  2. 2Southampton General Hospital, Southampton, UK
  1. Correspondence to Dr Iolo Doull, Respiratory/Cystic Fibrosis Unit, Children's Hospital for Wales, Cardiff CF14 4XN, UK; doullij{at}cf.ac.uk

Abstract

Background Although care for children with cystic fibrosis (CF) is increasingly shared between CF centres and local CF clinics, the optimal model is unclear.

Objectives The authors compared three models of care within a well established CF network: full centre care; local clinic based care with annual review by the CF centre; and hybrid care, where the child is usually reviewed at least three times a year by the specialist CF centre.

Results Of 199 children and young people with CF in South and Mid Wales, 77 were receiving full care, 102 shared care and 20 hybrid care. There were no significant differences in baseline characteristics, nutritional outcomes or use of chronic therapies. There was however a statistically significant difference between full, shared and hybrid care in mean forced expiratory volume in 1 s (FEV1) per cent predicted (89.2% vs 74.5% vs 88.9%; p=0.001).

Conclusions These differences in pulmonary function are likely to reflect the model of care received, and may affect long term outcomes.

Statistics from Altmetric.com

Footnotes

  • South and Mid Wales Paediatric Cystic Fibrosis Network: Jane Clarke, Kate Creese, Ian Hodges, Vishwa Narayan, Humphrey Okuonghae, Gwyneth Owen and Prem Pitchaikani.

  • Competing interest None.

  • Provenance and peer review Not commissioned; externally peer reviewed.

Request permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.