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Neurology

https://doi.org/10.1136/adc.88.suppl_1.A35

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    G95. INCIDENCE OF CHILDHOOD STROKE IN THE UK: DATA FROM THE BRITISH PAEDIATRIC SURVEILLANCE UNIT AND THE STRATEGIC HEALTH AUTHORITY

    F.J.K. O’Callaghan1, A.N. Williams2, A. Davis3, F.J. Kirkham1.

    1 Southampton General Hospital; 2 Northampton General Hospital; 3 West Midlands South Strategic Health Authority

    Background: Previous studies of childhood stroke have quoted figures for incidence of 1.29 to 13 per 100,000 but the reasons for the discrepancies are not clear. The provision of services for this previously neglected group of patients depends on accurate numbers.

    Methods: The orange card system of the British Paediatric Surveillance Unit (BPSU) was used to report cases of childhood stroke and/or cerebrovascular disease (CVD) from January 2001 to January 2002. Additional surveys of neurosurgeons, radiologists, paediatric cardiologists, cardiothoracic surgeons and haematologists were conducted using a similar system (parallel surveillance). The follow-up questionnaires were carefully scrutinised for adherence to the definition and duplicates were removed. ICD10 codes for diagnoses at discharge were obtained from the Strategic Health Authority (SHA) database.

    Results: For the period from 1st January to 31st March 2001, there were 72 notifications (9 haemorrhages) to the BPSU (n=64) or the parallel surveillance systems (n=8). From the SHA data during the same period, there were 63 hospital admissions in children for diagnoses very likely to be acute stroke and/or CVD (I601-I691) (31 haemorrghages) and an additional 4 for transient ischaemic attack, 82 for ‘hemiplegia’, 49 for complicated migraine and 65 for miscellaneous vascular conditions.

    Conclusion: There may be a difference in the numbers of children with childhood stroke and/or cerebrovascular disease reported from the BPSU and the discharge coding. This might be due to previously unrecognised differences in definition, to duplication in the SHA database because of inclusion of chronic conditions or transfer between hospitals, to under-reporting by the doctors surveyed or the possibility that other professionals see these patients. A childhood stroke registry might …

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