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G306(P) Researchand public awareness priorities for south asian children, young people and their families: a collaborative participatory approach to prioritisation
  1. L Manikam1,2,
  2. K Reed3,
  3. G Santini2,4,
  4. R Shah5,
  5. M Lakhanpaul1,2
  1. 1Population, Policy and Practice Programme, University College London Institute of Child Health, London, UK
  2. 2Child Health Working Group, South Asian Health Foundation, Birmingham, UK
  3. 3Kings College London School of Medicine, Guy’s and St Thomas NHS Foundation Trust, London, UK
  4. 4Independent Community Facilitator, Leicester, UK
  5. 5Neonatal Unit, Homerton University Hospital NHS Foundation Trust, London, UK

Abstract

Aims To undertake a prioritisation exercise involving healthcare professionals (HCPs) and South Asian (SA) families to develop child health research and public awareness agendas’

Methods A two-stage process was adopted. A HCP scoping survey was undertaken to generate topics important for SA child health (1) research (2) public awareness and (3) outcome indicators. Ranked lists were discussed in four focus groups of SA adolescents and families.

A Punjabi and Urdu speaking community facilitator moderated groups with a British Sign Language interpreter assisting in the deaf group. Concordant and discordant themes between HCPs and SAs were identified.

Results 27 HCPs participated in the survey. Table 1 summarises their priorities

Abstract G306(P) Table 1

Top HCP topics/outcome indicators

35 individuals (Age range: 16–74 and UK stay length: 3–57 years) participated. Groups varied by settings (Inner vs. Outer city), religion, descent and disability.

Engagement was highest on public awareness and lowest on outcome indicators. Lack of awareness of research undertaken by funders (NIHR, Wellcome Trust, MRC) were cited. Table 2 summarises their priorities.

Abstract G306(P) Table 2

Topics prioritised/not prioritised by South Asians

Conclusion Community engagement yielded research and public awareness priorities which differed with HCPs. In line with NHS England and NIHR national strategies, collaboration with communities whose views are not traditionally considered is essential to determine service and research agendas important to families, professionals and providers.

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