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Children’s quality of life: separating the person from the disorder

Correspondence to:
Peter Rosenbaum, McMaster University, CanChild Centre for Childhood Disability Research, IAHS Building, Room 408, 1400 Main Street West, Hamilton, Canada ON L8S 1C7; rosenbau@mcmaster.ca

The first 150 words of the full text of this article appear below.

Quality of life (QoL) has become a popular buzz phrase in many areas of community life, not least in the field of health services. A key paper published recently in the Lancet¹ on quality of life in children with cerebral palsy (the SPARCLE study) deserves highlighting in a wider context to an audience captured through the pages of this journal. The findings may in future profoundly affect the way health care professionals dealing with disabled children understand concepts of "quality of life" and apply these ideas in practice. As a member of a Canadian childhood disability research group (CanChild Centre for Childhood Disability Research) with interests in the study of QoL complementary to those of my colleague Professor Allan Colver’s SPARCLE group, I welcome the opportunity to offer personal perspectives on this exciting work.

Summarising briefly, the SPARCLE study used a well-developed broadly-based generic measure of QoL (the KIDSCREEN². . . [Full text of this article]