Perspectives
Every disabled child matters – but do they all benefit from benefits?
Correspondence to:
Dr Liz Marder, Children’s Centre, City Hospital Campus, Nottingham NG5 1PB, UK; Elizabeth.marder@nuh.nhs.uk
| The first 150 words of the full text of this article appear below. |
Bringing up children can be challenging. Caring for a child with long term illness or a disability brings additional challenges. This may include physical care of a child with no independent self-care skills, moving and handling a non-ambulant child, complex feeding regimes including those with tube feeding and gastrostomy, and medical procedures. There may be hospital and therapy appointments to attend. Therapists and education professionals may visit at home, with programmes to carry out on a daily basis between visits. Some disabled or sick children will need frequent attention during the night as well as during the day, and many will also have issues with poor sleep. Challenging behaviour is more common in children with learning disability, and is particularly associated with those who have a diagnosis of ADHD or autistic spectrum disorder.
The physical and emotional demands on the parents, carers and other family members can be high and
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