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Palliative medicine and ethics and law forum joint session

G233 INTESTINAL FAILURE: CHANGING PATTERNS OF PRESENTATION, MANAGEMENT, AND LONG-TERM OUTCOMES OF PATIENTS OVER 8 YEARS IN A REGIONAL CENTRE WITH COMPLETE CASE REFERRAL
A. R. Barclay¹, C. E. Paxton¹, A. Coates², P. M. Gillett¹, D. Hoole², J. Livingstone², G. Menon³, F. Munro⁴, D. C. Wilson¹.¹Department of Paediatirc Gastroenterology Royal Hospital for Sick Children, Edinburgh, UK; ²Nutrition Support Team, Royal Hospital for Sick Children, Edinburgh, UK; ³Department of Neonatology, Simpson’s Memorial Maternity Pavillion, Royal Infirmary of Edinburgh, Scotland, UK; ⁴Department of Paediatric Surgery, Royal Hospital for Sick Children, Edinburgh, UK

Background: The long term outcome for intestinal failure has been dramatically improved by parenteral nutrition, which allows growth while awaiting bowel adaptation or definitive treatment (small bowel transplantation). Recurrent bacterial sepsis and parenteral nutrition -associated cholestasis (PNAC) contribute to long term morbidity and mortality in intestinal failure. Few UK data exist as to long term survival and outcomes in this patient group in the post- parenteral nutrition era.

Aims: To describe the long term . . . [Full text of this article]

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