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Disability

G1 PARENT REPORTED QUALITY OF LIFE OF CHILDREN AGED 8–12 YEARS WITH CEREBRAL PALSY ACROSS EUROPE
M. White-Koning¹, C. Arnaud¹, A. Colver².¹INSERM, Toulouse, France; ²University of Newcastle, Newcastle, UK

Aims: Quality of life (QoL) should be self reported and subjective. However in children with intellectual impairment, it may be necessary to use proxy parental reports—and for comparisons across the range of intellectual ability to record also proxy reports for children who can self complete. This paper describes Qol as reported by their parents of children with cerebral palsy (CP) and explores the extent to which age, socioeconomic factors and impairments (including intellectual impairment) influence it.

Methods: Within a wider study of the relationship of participation and QoL to the environment, 818 children with CP were visited at home in seven European countries (including UK and Ireland). KIDSCREEN was administered—a QoL instrument, suitable for parent completion, developed from focus group work with children across Europe. It has 10 domains including emotion, autonomy, friendships, . . . [Full text of this article]