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Computer and information

G160 WHAT ARE THE INFORMATION NEEDS OF FAMILIES OF CHILDREN WITH A DISABILITY? PILOT OF AN INFORMATION PRESCRIPTION
M. A. Bracewell, J. Judson, L. Nixon, A. Wolff.Nottingham City Hospital, Nottingham, UK

Introduction: The Department of Health is encouraging professionals to provide more information and empower families to share decision making.^{1, 2} At the Children’s Centre (a focus for multidisciplinary services for children and young people with complex disabilities) there are Information Officers to assist families seeking the most accurate, up-to-date and relevant information.

Aims: We have commenced a pilot of an information prescription to facilitate the provision of information and record the information needs of our clients.

Methods: Information prescription pads have been distributed to the paediatricians working in the Children’s Centre. The paediatrician discusses the child/family information needs at each consultation and completes an information prescription. This is taken or posted to the information officers, who then provide the information. The prescription records the age/diagnosis/language spoken/information required and whom it is for, with contact details.

Results: Eight . . . [Full text of this article]