Article
Parents' perceptions of disclosure of the diagnosis of cerebral
palsy
G Bairda, H McConachieb, D Scruttonc
a Guy's and St
Thomas's NHS Trust, Newcomen Centre, Guy's Hospital, 1 St Thomas
Street, London SE1 9RT, UK, b Department of Child Health, University of
Newcastle, The Fleming Nuffield Unit, Burdon Terrace, Jesmond,
Newcastle-upon-Tyne NE2 3AE, UK, c Neurosciences Unit, Institute of Child Health
and Paediatric Department, Guy's, King's College and St Thomas's
Hospitals Medical and Dental Schools, King's College, London, UK
Correspondence to: Dr Baird Gillian.Baird{at}gstt.sthames.nhs.uk
Accepted 13 July 2000
The aim of the paper is to propose guidelines for good practice
in disclosing the diagnosis of cerebral palsy to parents. The
guidelines draw on an interview study with parents of 107 children,
average age 24 months, in the South East Thames region. In addition
case notes were examined, and mothers completed questionnaires to
measure current levels of depression and coping strategies. Dissatisfaction with how the diagnosis had been disclosed was greater
where children had been premature and/or low birth weight, where they
developed more severe degrees of physical disability, and where the
diagnosis had been made later. Dissatisfaction was related to greater
degrees of later self reported depression. The guidelines take account
of the findings, in particular the need for early close liaison between
neonatology and community paediatric services. Suggestions are made
for how to ensure implementation and monitoring of good practice.
Keywords: cerebral palsy; patient satisfaction; early diagnosis; guidelines.
© 2000 by Archives of Disease in Childhood
CiteULike 
Complore 
Connotea 
Del.icio.us 
Digg 
Reddit 
Technorati What's this?
Relevant Article
-
Rapid responses
Arch. Dis. Child. 2001 84: 217.[Extract] [Full Text]
This article has been cited by other articles:
-
Sices, L., Egbert, L., Mercer, M. B.
(2009). Sugar-coaters and Straight Talkers: Communicating About Developmental Delays in Primary Care. Pediatrics
124: e705-e713
[Abstract] [Full Text] -
Blair, M, Hall, D
(2006). From health surveillance to health promotion: the changing focus in preventive children's services.. Arch. Dis. Child.
91: 730-735
[Full Text] -
Rahi, J. S., Manaras, I., Tuomainen, H., Hundt, G. L.
(2004). Meeting the Needs of Parents Around the Time of Diagnosis of Disability Among Their Children: Evaluation of a Novel Program for Information, Support, and Liaison by Key Workers. Pediatrics
114: e477-e482
[Abstract] [Full Text] -
Brogan, C. A., Knussen, C.
(2003). The Disclosure of a Diagnosis of an Autistic Spectrum Disorder: Determinants of Satisfaction in a Sample of Scottish Parents. Autism
7: 31-46
[Abstract] -
MARLOW, N.
(2001). A touch of cerebral palsy. Arch. Dis. Child. Fetal Neonatal Ed.
84: 4F-5
[Full Text]
eLetters:
Read all eLetters
- Bad news will be unpleasant
- Charles Essex
- ADC Online, 4 Jan 2001 [Full text]
- Full Text
- Full Text (PDF)
- Submit a response
- Read responses to this article
- Alert me when this article is cited
- Alert me when eLetters are posted
- Alert me if a correction is posted
- Citation Map
Services
- Email this link to a friend
- Similar articles in ADC Online
- Similar articles in PubMed
- Add article to my folders
- Download to citation manager
- Request Permissions
Citing Articles
Google Scholar
PubMed
Topic Collections
-
Child and adolescent psychiatry (paedatrics)
-
Child health
-
Disability
- Cerebral palsy
- Relevant Article
Bookmark with
Register for free content
The full back archive is now available for all BMJ Journals. Institutional subscribers may access the entire archive as part of their subscription. Personal subscribers will also have access to all content when logged in. Non-subscribers who register have free access to all articles published before 2006 right back to volume 1 issue 1. Register here to access the free archive of all BMJ Journals.
Don't forget to sign up for content alerts so you keep up to date with all the articles as they are published.
