Can routine information systems be used to monitor serious disability?
a National
Perinatal Epidemiology Unit, Radcliffe Infirmary, Oxford OX2 6HE, UK, b Oxford Register of Early Childhood
Impairment, John Radcliffe Hospital, Oxford OX3 9DU, UK
Correspondence to: Dr Johnson. email: ann.johnson{at}perinat.ox.ac.uk
Accepted 11 August
1998
OBJECTIVE
To determine whether reliable birth
cohort prevalence rates of disabling conditions in early childhood can
be obtained from child health information systems.
DESIGNComparison of two sources of information on
motor and sensory disabilities: from child health information systems
held by health authorities, and a population register that uses
multiple sources of ascertainment.
SETTINGThe counties of Oxfordshire,
Buckinghamshire, and Northamptonshire.
PARTICIPANTSChildren born to residents of the
three counties between 1984 and 1989.
RESULTSEight hundred and twenty children
(6.0/1000 live births) were identified from the child health system as
having one or more of the conditions, and 580 (4.2/1000 live births)
were identified from the population register; however, only 284 children were identified by both sources.
CONCLUSIONSIt is currently impossible to monitor
trends in the prevalence rate of disabling disorders in childhood using
the child health information systems. Agreement about ways of
collecting, recording, and collating information on disability would be
a useful step towards realising the full potential of these systems.
© 1999 by Archives of Disease in Childhood
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