The needs of children whose mothers have HIV infection
Edinburgh
Sick Children's NHS Trust, 10 Chalmers Crescent,
Edinburgh EH9 1TS
Correspondence to: Dr Mok.
Accepted 4
September 1997
AIM
To ascertain the psychological, social, and
educational needs of children born to mothers with HIV infection.
METHODSReview of case records of 120 children and
86 mothers.
RESULTSThe cohort of 120 children were born to 92 women, and followed up for a median duration of 48 months (mean (SD)
51.1 (34.1), range 0.3-132). Sixteen children were infected with HIV,
15 were of indeterminate status, and 89 uninfected. Eighty one children (68%) were cared for by their birth mother, of whom 52% were single women and 23 (38% of 61) known to have symptomatic HIV disease. Twenty
five mothers of 32 children had died; the child's mean (SD) age at
maternal death was 66.9 months (37.7) (range 4-128). Compared with
uninfected children, more infected children knew of their mother's
diagnosis (31% v 5%) and mothers were also more likely
to disclose their own illness to educational authorities (77%
v 13%). A larger proportion of infected children had
special educational needs (69% v 13%). Only 33 children
(28%) were known not to be receiving any support from the voluntary or
statutory agencies.
CONCLUSIONThe results highlight the multiple
needs of children living with maternal HIV infection, which require
dedicated resources and commitment from health, education, and social
work agencies and the voluntary sector. We propose the model of chronic
illness as the standard of care for these children.
© 1997 by Archives of Disease in Childhood
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