A family clinic
optimising care for HIV infected children and
their families
a Department of Infectious Diseases, Great
Ormond Street Hospital for Children NHS Trust, London, b Department of Epidemiology and
Biostatistics, Institute of Child Health, London, c Department of Sexually Transmitted Diseases,
UCL Medical School, London
Correspondence to: Dr Diana M Gibb, Department of Epidemiology and Biostatistics, Institute of Child Health, 30 Guilford Street, London WCIN 1EH.
Accepted 25 September
1997
A family clinic providing specialist paediatric and adult
medical, testing, counselling, and terminal care services for families living with HIV was set up at a paediatric tertiary care hospital in
London in 1991. During the first five years, until April 1996, 185 children from 149 families attended, including 119 infected children,
of whom 32 have died. Only 5% of mothers were born in the UK; the rest
were born in 24 different countries, the majority in sub-Saharan
Africa. Less than a quarter of children were cared for by both parents,
61% by mothers alone, and 11% by guardians or foster parents. Of the
adult attendees, 76% were women, and more than half were untested when
they first attended the clinic. Provision of a family planning service
within the family clinic was initiated as a result of women presenting
with unplanned pregnancies. Shared care with local clinics is
increasing, but with the complexity around the management of paediatric
HIV infection, particularly with regard to antiretroviral treatments,
there is need for continued specialist input. Coordination among
specialist and locally based family services is required to provide
flexible, accessible, and up to date care for families living with HIV
infection in London.
© 1997 by Archives of Disease in Childhood
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